Thursday, January 8, 2009

After the Bon Bons and Soap Operas....

footedit1
So many of you have been so sweet to ask about 4 of 8's post surgery progress and 7 of 8's continued therapy following the diagnosis of a neonatal stroke.

And can I just take a moment to thank all of you so much for your kind words, prayers and sweet thoughts?

Thank you.

Thank you.

I thought I would cart the camera along to our session yesterday so you could see what we're up to and how we are progressing. Physical and occupational therapy is a study in patience. We set goals, we creep toward the goals, we celebrate the creeping and then we set new goals.

For an instant-gratification girl like me (hence the blogging-publishing fascination), slow, steady progress is a crucible of character-building.

I should have really big, strong, ripped character after this....

But I'm loving being along for the adventure, for the new knowledge about brain development and growth and re-wiring, about proprioception and muscle memory.

I always try to drink a big cup of coffee so my synapses are at high alert during these sessions.

4 of 8 was released by her orthopedic surgeon yesterday to rehabilitate with abandon-and she's reveling in that prognosis...

4of8therapy1
With just a couple of hiccups, 4 of 8's tarsal coalition surgery has been a success and she is enjoying significantly improved flexibilty in her previously 'frozen' ankle and foot...

4of8ankle

4 of 8 really enjoys the 'girl' time with her physical therapist, Miss Laurie. I may have to have Miss Laurie sign a non-disclosure privacy form, since 4 of 8 seems intent on sharing all kinds of family 'moments' with Miss Laurie during their sessions...

4of8therapy2

I may need to remind 4 of 8 that this is 'physical' therapy...

4of8profile

7 of 8 continues to make nice progress as we attempt to wake up her left side following a neonatal stroke.

lefthand

We spend a lot of time focusing on her left hand, getting her to open it, grab with it, clutch with it...we're pretty much left hand obsessed around here...

stretch

We've actually discussed having her hand and forearm treated with Botox to release some of the muscle rigidity...so you know I live in a crazy world when my kid is gonna get Botox before I do...

7of8ot1

It's such an inspiration to watch Miss Pam and Miss Laurie work with my girls, coaching and loving and prodding and pushing them toward higher goals. I'm pretty much the president of the Miss Laurie/Miss Pam Fan Club...

7of8crawltherapy2

I'm thinking I may need a t-shirt stating my allegiance to the stated Miss Laurie/Miss Pam Fan Club...

Here's my baby girl, standing on her own. They tell me that they do believe she will walk.

standing

...which makes me cry...but they're good tears...they're tears of hope.

bike1

And what follows next is the one of the most beautiful photographs I have ever taken, but if I didn't give you the details, it could just pass you by. We've worked for months to wake up this little left hand. We've asked it to open and to feel and to take in textures and to pinch and to grab. And now, it's starting to. And it is a masterpiece.

7of8hand

I love that little hand.





signature blog1 Pin It

43 comments:

  1. Yay! Go 4 of 8! Go 7 of 8! Go Miss Laurie! Go Miss Pam!
    Go Octamom and all of the 'of 8's!
    Let hope triumph!

    ReplyDelete
  2. It really is heart warming to hear you talk about the progress your girls have made. Yay! I can't believe how big 7 of 8 is getting. I've been reading your blog since about July, and it's amazing to see how much she's grown in 6 months... I guess mine too, but I see them every day! We sold one of our cribs yesterday, BTW! How sad it was. :-(

    ReplyDelete
  3. ok sign me up as a member of the Miss Laurie and Miss Pam fan club...I am so thrilled to hear a good report on your sweet girl's progress...

    And I cannot even imagine the flood of joyful tears that 7 of 8 will walk...hooray!!! and a sweet sweet left hand.

    4 of 8 I am sure has lots of tales to tell!!!

    ReplyDelete
  4. How thrilling to see results! So glad they are both doing so well.

    ReplyDelete
  5. I just love reading your blog. You live a very fascinating life.

    ReplyDelete
  6. What sweet people you have helping your kiddoes. So glad 4 of 8 is doing so much better. It must be so wonderful for her to be able to use her foot more.

    7 of 8 is such a beautiful little girlie. Those eyes are amazing. Yeah for left hands! :)

    ReplyDelete
  7. Yay for that wee little hand gripping on tight to the trike!

    That's not much of a scar for 4, it wont get her much attention and sympathy, she'll have to perfect her dramatic story because without a scar she's only got the story.

    My friends little girl had botox to help some leg muscles when she was 4. It made for some great conversation about little E going in for her botox top-up. And the doctor wasnt kind enough to slip some her mummy's way, something about malpractice :)

    WAY TO GO 4 & 7.

    ReplyDelete
  8. Let there be Cake! Congratulations 4,7, & Mom of 8! I do believe she will walk too. I believe nothing but good things, because He has promised us a plan of Hope and a Future.

    Many Blessings, Carolynn

    ReplyDelete
  9. Awhhh that's so great! Hoooray! =>

    XOXO

    ReplyDelete
  10. Ok...so maybe it's my preggo hormones or something or maybe it's how sweet this post is...but I have tears in my eyes too! Praise the Lord for that little hand! :) Thanks for sharing!

    ReplyDelete
  11. Such perfection in each step of progress. God bless each of you, and those who are so ably paving the way. :)

    Peace and blessings.

    ReplyDelete
  12. What sweet, sweet children. They do kind of make you slow down and focus on the journey, don't they? And I'm thinking that physical therapy/counseling sounds like a very effective activity for what looks like a tween-age child. Kudos to you for your great attitude.

    ReplyDelete
  13. Praise the Lord--He is so good!

    ReplyDelete
  14. wow this was such a cheering, inspiring post! thank you for sharing! i'm so happy for 4/8 and 7/8. and i'll continue to pray for your bunch! :)
    beautiful pictures. i adore hands. they are mini-creators. :)
    love, night

    ReplyDelete
  15. amazing! so grateful things are progressing:)

    ReplyDelete
  16. Beautiful!

    Amazing what kidlets will tell someone they feel close to.

    7 of 8 sure is a cutie.

    Wow busy life.

    ReplyDelete
  17. So happy to see they are both progressing! Hang in there and we will keep up the prayers!

    ReplyDelete
  18. awesome news! Thanks so much for the update. farewell to the bon bons :)

    will continue to send up prayers!

    ReplyDelete
  19. Wonderful, Wonderful, Wonderful! I am so happy to hear about the girls' progress. My little one likewise is talking up a storm these days. I laugh because we've spent this past year trying to get him to talk, now we are moving toward getting him to be quiet. :-) Seriously, it is wonderful to see what therapists can do for our children. When you are printing up the fan club t-shirts, make mine say We love Ms. Kathleen!

    Best Wishes!

    ReplyDelete
  20. I'm so glad to hear that your girls are improving. I haven't been around long enough to know the history of your daughters neonatal stroke. How lucky that you are getting her therapy early. Keep us updated on their progress.

    ReplyDelete
  21. I just wanted to say, your daughters are beautiful girls! You are very blessed! (I'm sure you know that ;).)

    ReplyDelete
  22. Tears welling here. What a great post to share. I know from experience with my girls prematurity (30 weeks) how hard we had to work to get all the planets aligned :) We had physical therapy till the girls were 20 months.

    ReplyDelete
  23. What wonderful progress your lovely girls are making! I'm always AMAZED by what physical therapists can do. God's little miracle workers, I think! What a sweet little hand on the bike. It is truely incredible!

    ReplyDelete
  24. I'm so glad everything seems to be going so well for your girls. It's a relief for you, I'm sure, even if it is a little slow going. xo

    ReplyDelete
  25. I have happy tears in my eyes for you.

    We are on a long therapy road in our house as well. My oldest has Apraxia and a doctor once told me he would never speak. Last Summer he started speaking in sentences.

    We heart our therapists too!!!!

    ReplyDelete
  26. Praise the Lord!!! I'm so glad to hear they are both doing so well!!! =)

    ReplyDelete
  27. Beautiful photos of two courageous, precious girls.
    They are both shining lights in our wonderful world.
    Please give them both a special hug from their Aussie friend.
    Namaste
    Peggy

    ReplyDelete
  28. Great news with their progress. :) I'm so happy to hear they are motivated to keep going with their program. What a woonderful example you give your kids with your drive to help them achieve their goals. Way to go Octamom and the Octakids. :)

    ReplyDelete
  29. As a speech therapist I know how slow progress feels sometimes.

    I am a goal oriented gal too.
    I often talk about slow and steady wins the race.
    Great to see you have such great therapists for your girls.

    ReplyDelete
  30. I must have missed 7 of 8's story. Im sorry. She is beautiful and will be in my prayers! Woohoo on the left hand!!

    Yay for 4 of 8's foot healing and for enjoying therapy! Continued prayers for her as well!

    ReplyDelete
  31. Fantastic! It makes me smile and laugh to see such fantastic progress. So much hope and God is so faithful!

    ReplyDelete
  32. I'm so happy to hear about their progress...that just warms my heart! 4's freckles are so adorable and 7's little hand picture, well, all I can say is I need to go get some tissue...sniff. Sooo sweet. Congrats on the progress!

    ReplyDelete
  33. Look at that little hand!! I LOVE it! It brings tears to my eyes too.

    Those therapy pics are amazing, breathtaking and encouraging.

    Maybe b/c I'm a therapist too. Maybe b/c I'm a mom. Maybe both.

    ReplyDelete
  34. Sigh - I didn't know about either of these issues.

    That last photo just about made me cry.

    I'm so glad your daughters are on their way to recovery.

    ReplyDelete
  35. Good for your girls! Give them an extra hug for me to celebrate their hard work and progress! Thank goodness for wonderful people who devote their lives to helping others.

    ReplyDelete
  36. Such a wonderful post to see your girls doing so well! Oh- and that last picture of that little hand clutching the handle just brought major chills. How precious and wonderful!

    ReplyDelete
  37. I am not even their mom and I am tearing up with joy over their progress. What a wonderful blessing and start to the year!

    ReplyDelete
  38. I have been trying to figure out the age difference between your twins and mine to see where we are in therapy with mine who also suffered an in utero stroke. (and the other suffered a brain hemmorage) It's excellent news that 7 is holding and gripping. That is great progress. What a blessing.
    Does she wear a splint to keep her hand more open? I know that splinting Emma's thumb helped quite a bit.

    ReplyDelete
  39. May the Lord bless you and your dear family, as you faithfully work through the challenges of life.

    Your sweeties are adorable, and they seem perfectly happy to work, too. :)

    ReplyDelete
  40. That last picture, and your sweet words made me cry! And I don't even know you! But I've been reading through your blog (send here by Homemaking Through the Church Year) and I feel like I'm getting to know you, and I think that you much have a very large, very beautiful heart.

    ReplyDelete

Related Posts with Thumbnails